Privacy

Patient privacy is important

Data submitted to the registry is identified by a registry number. Individual patients are not identified by the registry.

Downloaded information that is used for analyses will be securely stored in the Westmead Hospital Department of Renal Medicine Research Office.

The Australian Calciphylaxis Registry has been assessed by the Western Sydney Local Health District Human Research Ethics Committee and has received that committee's approval. The participatiion of hospitals in other states has also been approved by their ethics committees.  
 

Useful links

  • Caring for Australasians with Renal Disease (CARI)

    Kidney Health Australia, CARI Guidelines.

    Caring for Australasians with Renal Imparement. An Australian & New Zealand Clinical Guidelines Initiative.
    Supported by KHA & ANZSN

  • ANZSN
     Australian and New Zealand Society of Nephrology (ANZSN) resource site
    The aims of the Society are to promote and support the study of the kidney and urinary tract in health and disease, and to ensure the highest professional standards for the practice of nephrology in Australia and New Zealand.
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