Privacy

Patient privacy is important

Data submitted to the registry is identified by a registry number. Individual patients are not identified by the registry.

Downloaded information that is used for analyses will be securely stored in the Westmead Hospital Department of Renal Medicine Research Office.

The Australian Calciphylaxis Registry has been assessed by the Western Sydney Local Health District Human Research Ethics Committee and has received that committee's approval. The participatiion of hospitals in other states has also been approved by their ethics committees.  
 

Useful links

  • National Kidney Foundation (NKF)
     The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.
  • Caring for Australasians with Renal Disease (CARI)

    Kidney Health Australia, CARI Guidelines.

    Caring for Australasians with Renal Imparement. An Australian & New Zealand Clinical Guidelines Initiative.
    Supported by KHA & ANZSN

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