Privacy

Patient privacy is important

Data submitted to the registry is identified by a registry number. Individual patients are not identified by the registry.

Downloaded information that is used for analyses will be securely stored in the Westmead Hospital Department of Renal Medicine Research Office.

The Australian Calciphylaxis Registry has been assessed by the Western Sydney Local Health District Human Research Ethics Committee and has received that committee's approval. The participatiion of hospitals in other states has also been approved by their ethics committees.  
 

Useful links

  • Dialysis Outcomes and Practice Patters
     Dialysis Outcomes and Practice Patters Study program site
    The DOPPS Program collects observational longitudinal data from around the world
    to identify clinical practices with the most benefit for patients.
  • ANZDATA

    Australian and New Zealand Dialysis and Transplant Registry (ANZDATA)

    ANZDATA collects a wide range of statistics which relate to the outcomes of treatment of those with end stage renal failure.

    All renal units in Australia and New Zealand participate.

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