Privacy

Patient privacy is important

Data submitted to the registry is identified by a registry number. Individual patients are not identified by the registry.

Downloaded information that is used for analyses will be securely stored in the Westmead Hospital Department of Renal Medicine Research Office.

The Australian Calciphylaxis Registry has been assessed by the Western Sydney Local Health District Human Research Ethics Committee and has received that committee's approval. The participatiion of hospitals in other states has also been approved by their ethics committees.  
 

Useful links

  • Kidney Disease Improving Global Outcomes (KDIGO)
     KDIGO is the global organization developing and implementing evidence based clinical practice guidelines in kidney disease.  It is an independent volunteer-led self-managed charity incorporated in Belgium accountable to the public and the patients it serves.
  • ANZDATA

    Australian and New Zealand Dialysis and Transplant Registry (ANZDATA)

    ANZDATA collects a wide range of statistics which relate to the outcomes of treatment of those with end stage renal failure.

    All renal units in Australia and New Zealand participate.

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