Patients & Families

Support Group Links

You will be our best resource here.

if you have found a useful support group or interactive site, please let us know so that we can add a link from the Australian Calciphylaxis Registry for other users.

Useful links

  • Kidney Disease Improving Global Outcomes (KDIGO)
     KDIGO is the global organization developing and implementing evidence based clinical practice guidelines in kidney disease.  It is an independent volunteer-led self-managed charity incorporated in Belgium accountable to the public and the patients it serves.
  • ANZDATA

    Australian and New Zealand Dialysis and Transplant Registry (ANZDATA)

    ANZDATA collects a wide range of statistics which relate to the outcomes of treatment of those with end stage renal failure.

    All renal units in Australia and New Zealand participate.

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