Patients & Families

Support Group Links

You will be our best resource here.

if you have found a useful support group or interactive site, please let us know so that we can add a link from the Australian Calciphylaxis Registry for other users.

Useful links

  • German Calciphylaxis Registry
     The German Calciphylaxis Registry,
    It is our goal, together with our international research partners, to establish a network for clinical and scientific exchange in the field of calciphylaxis. In Germany, we have been collecting data on patients with calciphylaxis (calcific uraemic arteriolopathy) since 2006 via our online registry.
  • Kidney Disease Improving Global Outcomes (KDIGO)
     KDIGO is the global organization developing and implementing evidence based clinical practice guidelines in kidney disease.  It is an independent volunteer-led self-managed charity incorporated in Belgium accountable to the public and the patients it serves.
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