Patients & Families

Support Group Links

You will be our best resource here.

if you have found a useful support group or interactive site, please let us know so that we can add a link from the Australian Calciphylaxis Registry for other users.

Useful links

  • Australian Kidney Trials Network (AKTN)
     The Australasian Kidney Trials Network
    The mission of the AKTN is to deliver high quality clinical trials to improve the health and wellbeing of people with kidney disease
  • German Calciphylaxis Registry
     The German Calciphylaxis Registry,
    It is our goal, together with our international research partners, to establish a network for clinical and scientific exchange in the field of calciphylaxis. In Germany, we have been collecting data on patients with calciphylaxis (calcific uraemic arteriolopathy) since 2006 via our online registry.
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