Patients & Families

Support Group Links

You will be our best resource here.

if you have found a useful support group or interactive site, please let us know so that we can add a link from the Australian Calciphylaxis Registry for other users.

Useful links

  • German Calciphylaxis Registry
     The German Calciphylaxis Registry,
    It is our goal, together with our international research partners, to establish a network for clinical and scientific exchange in the field of calciphylaxis. In Germany, we have been collecting data on patients with calciphylaxis (calcific uraemic arteriolopathy) since 2006 via our online registry.
  • Dialysis Outcomes and Practice Patters
     Dialysis Outcomes and Practice Patters Study program site
    The DOPPS Program collects observational longitudinal data from around the world
    to identify clinical practices with the most benefit for patients.
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