Patients & Families

Support Group Links

You will be our best resource here.

if you have found a useful support group or interactive site, please let us know so that we can add a link from the Australian Calciphylaxis Registry for other users.

Useful links

  • National Kidney Foundation (NKF)
     The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.
  • Dialysis Outcomes and Practice Patters
     Dialysis Outcomes and Practice Patters Study program site
    The DOPPS Program collects observational longitudinal data from around the world
    to identify clinical practices with the most benefit for patients.
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