About Us

Aims and Objectives

Objectives of the proposed Australian Calciphylaxis Registry
  1. To develop a large database, together with relevant laboratory samples from patients with calciphylaxis, to provide a resource for research into its causes.
  2. To develop an evidence base for management and for evaluating the safety and efficacy of therapies to improve treatment and overall patient care.
  3. To provide advice and physician feedback when required, including information on management.
  4. To securely combine deidentified Australian registry data with data from European and other international registries